Ulcerative colitis what to stay away from?

bca21

Active member
About 6 weeks ago I was pooping blood 10x a day and couldn’t eat or drink. Went to hospital (nightmare) and was diagnosed with ulcerative colitis. My colon from top to bottom was in a flare with passing blood 10x a day. I lost 30 pounds in 5 weeks. Right now I’m on predistone and it’s been a few weeks now. No more blood, cramps
Going down and started lifting again lite weight, lot of reps. I got 250mg test and 100mg of npp to help
With joint pain and get a little water on me. Is there anything I shouldn’t do? I’m pretty nervous honestly. Been eating super clean and just started forming real poops with no blood and being able to sleep at night. Fish, shrimp, chick, potatoes, bread. Not much rough vegetables, dairy or fried foods. Any hel Would be nice since this is all new me. I’m only 35 years old. I’m scared once I get of the predistone it might come back? The hospital and Dr was a huge quack and cost me 5 in needed days in the hospital that ruined me physically.
 
Well, go with the least inflammatory foods. Bread is inflammatory, I'm not exactly sure about potatoes. For meat I'd say either raww or lightly cooked grass fed beef is actually very easy on the digestive system. I drink eggs either straight or blended with water in a protein shake, usually 6 in am and 6 in pm or 4 3x a day. With them uncooked the cholesterol is actually healthy imo.

Healthy fats are soothing for the whole body. I'd say finding a legit source of olive oil and drinking a few ounces of that through the day helps. Walmart brand in glass bottle is actually good. I'd drink an ounce 4x a day if I was in your position to keep your colon coated and soothed.

Also unrefined coconut oil is anti inflammatory if you can get that in somehow.

You might actually do well with fasting. Your body won't have to focus on digestion and will start to heal itself

Taking in plenty of collagen and 10 grams of vitamin C spread throughout the day will lower inflammation and rebuilt the tissues as well

Hope this helps
 
My daughter was diagnosed with UC at age 11. Was very frustrating the first 6-12 months while we played the insurance game of trying the treatments (meds) in their recommended (cheapest) order. The biologic medicines are where its at for auto immune disorders. She remicade by iv infusion every couple months was the first med that have her any decent help. Eventually a couple years later entyvio was added to the infusions. She has done pretty well since (is 19 now). Humira is another option.
 

bca21

Active member
My daughter was diagnosed with UC at age 11. Was very frustrating the first 6-12 months while we played the insurance game of trying the treatments (meds) in their recommended (cheapest) order. The biologic medicines are where its at for auto immune disorders. She remicade by iv infusion every couple months was the first med that have her any decent help. Eventually a couple years later entyvio was added to the infusions. She has done pretty well since (is 19 now). Humira is another option.
I’m still new to this but how does it work? I don’t want to be graphic but for 10 years on and off when I would gain weight I would get super gassy and have blood in my stool. Out of no where at 35, about 5 weeks ago my whole colon swollen, couldn’t eat or drink for 2 days, pooped blood 10x a day, went to hospital, lost 25 pounds in less than a month, and for a month straight couldn’t sleep more then 2 hours with extreme urge to poop. Been in Predistone for 3 weeks now. I can finally eat, the night time burger went away about a week ago, no more blood, and put on 7 pounds. When I come off the predistone, will it all come back?
Will I be normal until my body decides for it to happen again?
Dr wants me taking mesalamine. Is that to prevent it from happening again? I’m lost. My dr is a complete idiot and screwed me by waiting 5 days in the hospital to give me a colonoscopy because he said it would pass and it’s probably just a stomach bug. So is it like taking aspirin to prevent a headache? I’m honestly scared and nervous. It was the worse 3-4 of my life to where I honestly didn’t even want to live. It was miserable. My body was deteriorating
 

zeusmcgee

Well-known member
I would start taking healing peptides for systemic relief. Bpc-157, TB-500, HGH, Epithalon. Definitely worth researching the above compounds for helping with UC and related issues. Also for mental relief and rehab CEREBROLYSIN AND ACTOVEGIN ARE GOD TIER.
 

bca21

Active member
I would start taking healing peptides for systemic relief. Bpc-157, TB-500, HGH, Epithalon. Definitely worth researching the above compounds for helping with UC and related issues. Also for mental relief and rehab CEREBROLYSIN AND ACTOVEGIN ARE GOD TIER.
Just started Bpc tb and Bpc! Thanks for the input. Researching the rest now!
 

zeusmcgee

Well-known member
Best of luck with the healing process definitely touch base with @SOUR DIESEL as he can give you an even more in depth answer than I can on this entire topic.
 

Triposinator

Active member
About 6 weeks ago I was pooping blood 10x a day and couldn’t eat or drink. Went to hospital (nightmare) and was diagnosed with ulcerative colitis. My colon from top to bottom was in a flare with passing blood 10x a day. I lost 30 pounds in 5 weeks. Right now I’m on predistone and it’s been a few weeks now. No more blood, cramps
Going down and started lifting again lite weight, lot of reps. I got 250mg test and 100mg of npp to help
With joint pain and get a little water on me. Is there anything I shouldn’t do? I’m pretty nervous honestly. Been eating super clean and just started forming real poops with no blood and being able to sleep at night. Fish, shrimp, chick, potatoes, bread. Not much rough vegetables, dairy or fried foods. Any hel Would be nice since this is all new me. I’m only 35 years old. I’m scared once I get of the predistone it might come back? The hospital and Dr was a huge quack and cost me 5 in needed days in the hospital that ruined me physically.

Been there, and done that UC thing. I happened to be under the care of Mayo Clinic at the time. I was NEVER instructed to avoid any type of food - and I asked, more than once.

I recall returning to the gym after my flare subsided. After the prednisone and bull shit I lost more than 40% of my strength.

I don't think the Bro Scientists have much to offer here.

One thing I can point out - I was using HgH at the time. And that was when it was being hailed as the fix for everything - including UC! Lesson learned. It didn't cure it, or avoid it!
 

Triposinator

Active member
Ulcerative Colitis is an Autoimmune disease.

You want to kick the crap out of a "flare" prednisone is the answer. Reducing inflamation after the flare is best handled with (and you're going to love this) Mesalamine enemas, which you hold overnight and Balsalazide Yeah Boy!

I wouldn't expect any benefit with Bro Science stuff. It may not hurt, but won't help.

Even 10+ years later I'm taking Balsalazide every day. Initially nearly 7500mg daily, now 1/3 that.

And I haven't had a flare since the original.

You are probably going to get annual colonoscopies for a while. The inflammation it creates can be a precursor to cancer.

I've been "clear" now for a couple of years. But had pre cancerous polyps almost every year for a long time.

If your Doc isn't telling you all of this he's incompetent and you need to find a better one.
 

dowork123

Donating Member
I can’t offer med advice, but I can offer food advice. Bottom line, if you eat something and it agitates you at all, obviously do not eat that again.

I have IBS with constipation. It took a long time to realize what food to eat and what fiber to take. Every doctor always told me to eat fiber. Never mentioning I need soluble fiber specifically. so I’d eat greens and it just made things worse.

I try to eat bland foods and things that are soothing on my gut. Cream of rice, rice, russet potatoes, pork tenderloin, filet mignon, chicken etc. I only use mac nut, avocado or olive oil. Fage Greek yogurt is also great for my stomach. I take fiberlyze by species and I’m 95% better.

My main point is that you have to play with the diet and you may suffer a bit along the way as you learn. Took me 2 years to get it right and my doc wasn’t much help.

I hope you get it figured out soon. When my stomach is jacked I cannot function, I’m just grumpy.
 
Make sure you are working with a gastro dr. They will likely try you on the least invasive medicines in the beginning. That didnt cut it for my daughter as I said she moved onto the biologic medicines entyvio n remicade. There is also humira which can be self administered at home. My father has used that for his psoriasis (also an auto immune disorder) now for several years and it has worked great.

What i found with my daughter was a few foods were triggering for her. Anything with seeds, spicier stuff. But the biggest trigger was stress.
 

bca21

Active member
Make sure you are working with a gastro dr. They will likely try you on the least invasive medicines in the beginning. That didnt cut it for my daughter as I said she moved onto the biologic medicines entyvio n remicade. There is also humira which can be self administered at home. My father has used that for his psoriasis (also an auto immune disorder) now for several years and it has worked great.

What i found with my daughter was a few foods were triggering for her. Anything with seeds, spicier stuff. But the biggest trigger was stress.
Thank you so much and wish the best for her.
Does this illness affect people differently? For instance, I’m about 5 weeks on predistone. I’m almost back to normal. Stool is consistent, no more blood, no more cramps, finally sleeping at night. When I taper off these steroids will it come back? Instantly? Over time? They gave me mesalamine but I stopped taking it because the side effects. I’m nervous that when I come off the steroid, if it will come back instantly.
 
Its varies person to person and flare up to flare up. Might be good for awhile or it might flare up right away. Kind of just depends on finding the right med/med combination and lifestyle that manages it the best. Its not a very predictable illness. But it is possible to effectively manage when the right formula is found.
 
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